An unexpected journey If you are reading this you are starting an unexpected journey.   There is nothing positive to say about receiving difficult news about your child. It’s heartbreaking, life changing and hard to digest. It feels like happiness is a thing of the past. I wanted to contribute to this collection of thoughts…

There is a gift that comes with it Being the mother of Zacharie brings me immense happiness. This happiness took me some time to fully appreciate and develop and yet sometimes I’d just like to have a normal life.   We discovered my son had a cerebral malformation when he was 8 month old. I…

With all our love and energy Dear Parent, I can only speak of my own experience, but I hope it resonates with some of you, and provides whatever comfort it can.   My husband and I were unaware of the issues surrounding our son until he was 6 months old, when he did not start…

Life as it is Lots of people who went through similar experiences told me you’ll never forget the day when you learnt about your child being diagnosed with Down syndrome…or other conditions that you simply not expected or did not want to think about. It’s true, I still remember that day on May 4th in…

Trust Yourself One of the things I found most difficult initially was that everything was such a shock. It was hard to think straight, especially when there were so many different opinions about the various aspects of my daughter’s complex condition. We didn’t find out that there were any issues until my daughter was four…

Hang in there Dear Parents, I want to relate my experience in raising a “Special needs child” as a single parent. I hope that whatever I say may give you some insight or at least help encourage you to endure this difficult trial. I first learned that my child may have a “problem” when, her…

I would not trade Luca was born on the 8th of May 2012 just shortly before midnight. Today he is 5 years old. The years we have spent together have passed by incredible fast! People say that when it is good it passes by too fast, I can’t disagree. These years were one of the…

You’re still there. But Better If it is at all possible, I want you to look in the mirror. See that person staring back?   Its the same person who was there just before your child was diagnosed. In six months you’ll look in the mirror again and know that a better version of yourself…

Your child is not a diagnosis No matter what happens in a doctor’s office, an examining room, a hospital, a waiting room, a phlebotomy lab, a lobby, a prep room, a surgery room, a recovery room, a clinic, a rehab center, an evaluation room, a therapist’s office—that will always hold true.   What happens in…